Teachable Moments; 6 things I wish I knew before my daughter’s brain injury

wp-1483807802159.jpgLife can change in a blink of an eye. It’s a phrase you hear often and never really “get” until it happens. One day my nine-year old was walking, reading Harry Potter novels repeatedly, running after her friends and swimming like a fish and it all ceased within the seconds that passed when she slipped on wet leaves, fell forward onto a wooden beam on the ground and injured her head. We have both gone through the difficult phases of grief and as a parent it’s just natural to wonder if there was something I could have done differently or sooner to help her heal. What I’ve learned with the help of my dear friends (and some strangers) who allowed me to release my fears and frustrations into their ears was that I had no control over this accident nor could I change the way I navigated my way  through the health care matrix to find the appropriate care for her. What I can do however, is share my experience so that another parent is better informed about brain injury in children than I was when this accident occurred so here goes…

6 Things I wish I knew before my child’s head injury:

  1. Keep them home from school the following day.

    Luckily her accident happened the day before a holiday and she was able to rest for three days before she returned to school. Some of her concussion symptoms did not present themselves until close to a week later but if I was aware of the protocol for children who fell and hit their head I would have taken her to the doctor the next day.

  2. Get an incident report

    In my daughter’s case no one saw her fall and I was at work and unable to see her until an hour or so after the incident. We all had to take her word for what happened. It’s best for insurance documentation to get an incident report from the school (or organization if your child is at day care, summer camp or sports). Most child care organizations are required to fill out a report and should give you a copy. If they don’t, ask for it.

  3. Even if your child has only one symptom, take him/her to the pediatrician for evaluation

    Refer to #1 above for the list of concussion signs and symptoms from the Center for Disease Control. I’ve learned that not every child exhibits symptoms in the same time frame and severity and it’s best to proceed on the side of caution and take them to the pediatrician for evaluation even if they complain of only a headache. Your doctor may tell you that protocol is to wait a week but I would insist on having your child seen anyway.

  4. Seek out a pediatric concussion specialist in your area.

    Not every neurologist or hospital ER has a wealth of experience with every age range and not every pediatrician specializes in brain medicine. It took almost a month of going to doctors and emergency rooms before I found a doctor that best suited my daughter’s needs. I am not sure why but her first doctor did not seem to have compassion for her and her immediate needs. I asked neighbors and friends in the medical field until I received a few referrals for her specialty. My next step was to check to see which were covered under our insurance which narrowed the list down further. We are located in Pennsylvania, but the Brain Injury Association in your area can provide a list of service providers. I have also learned that sometimes to connect with the right doctor, you have to be willing travel. Don’t be afraid to seek a second opinion. Our second doctor was the best fit for her.

  5. Contact your school district and county for resources

    It wasn’t until I sought out a second opinion, six weeks post injury that I was informed there was a school re-entry program specifically for children with brain injury. This consulting division of our county’s Intermediary Unit serves as a liaison between the school and families and provides you with the resources and support you need to transition your child back to school. Brainsteps, the consulting program in Pennsylvania is fully funded by the state. My daughter’s case manager has visited our home and provided such encouragement for my daughter and myself!

  6. Make self-care a priority; ask for help and don’t be too proud to accept it!

I had no idea how exhausting and stressful it would be mentally and physically to manage a household, business (I’m self-employed) and my daughter’s care after her brain injury. Luckily I have a “village” of friends who knew it would drain me and immediately offered to help. I didn’t want to bother anyone because I knew they all had families to support but my friend reminded me that there’s enough compassion in this world for everyone. She asked if she could set up a meal train which allows neighbors to sign up and bring home cooked meals to your family. I didn’t realize how much time I spent on preparing and cooking our meals until I didn’t have to! Other friends have come to visit, helped with laundry and housecleaning or sat with my children so I could go out to the movies or just sit still with a cup of coffee or have a glass of wine with a good friend. You have to find time for yourself away from the stress and strain where you can relax and release. The help is available but you have to ask for and allow yourself to receive the help. Genuine help is there ; you are better able to care for your child when you take the time to care for yourself.

You may have experienced brain injury, be a medical professional or have a young child who may one day be diagnosed with a concussion; either way I hope this has been helpful to you.

Feel free to share and comment here if this was helpful and please take a moment to become a friend on our Facebook Page for African American Parenting.

Thank you for visiting. Make today great!

 

 

 

Habari Gani? Imani! (Faith)

Kwanzaa kinara--Virgin IslandsHappy New Year! Heri Za Kwanzaa (Happy Kwanzaa) ! Wishing you an abundance of joy, love and all things positive in the coming year. It has been a while since African-American Parenting has posted and I am committed to sharing on a more consistent basis in 2017. The past year has been tumultuous and we have been watching the community struggle, fight and bravely stand up for the preservation of our families, children and neighborhoods. There have been a lot of innocent lives lost yet it is promising to see the eruption of organizations and movements committed to fighting against brutality, inequality and institutionalized racism.

Our focus at African-American Parenting is to not only inform but to be a place of support and resource for those families, parents and community organizations to gather, share stories and find comfort and unity. Please feel free to email us at africanamericanparenting@gmail.com if you would like to submit a story, essay to the blog. Also if you have an idea, question, problem or anything you would like to see addressed or published on the blog, feel free to leave it in the comment section below.

Please  visit and become a “friend” of our Facebook page for African American Parenting which is often updated with local (tri-state area of NJ, PA, DE) and sometimes national events that support and educate the African-American community.

By no coincidence, on the seventh and final day of Kwanzaa, Imani (Faith) our family prepares for a Karamu (feast) where we break bread and share libations, review the Nguzo Saba (seven principles) and symbols of Kwanzaa, honor our ancestors and enjoy the love and accomplishments of both elders and youth.

Following in this tradition, it is for us then a time to ask and answer soberly and humbly the three Kawaida questions: Who am I; am I really who I say I am; and am I all I ought to be? And it is, of necessity, a time to recommit ourselves to our highest ideals, in a word, to the best of what it means to be both African and human in the fullest sense. ~ From The Official Kwanzaa Website

It is the best way for us to bring in the new year. In the spirit of Imani, we call upon our ancestors for their wisdom and strength and use the energy of the day and the collective village to sustain and increase our faith. With the uncertainties of the coming year it is the most important weapon in my humble opinion.

Wishing you an abundant new year!

 

Ben and Jerry’s Support for the #BlackLivesMatter movement. 

Thank you #BenandJerrys for doing the right thing! Be the change you want to see in the world. 

“We want to be clear: we believe that saying Black lives matter is not to say that the lives of those who serve in the law enforcement community don’t. We respect and value the commitment to our communities that those in law enforcement make, and we respect the value of every one of their lives.

But we do believe that — whether Black, brown, white, or blue — our nation and our very way of life is dependent on the principle of all people being served equal justice under the law. And it’s clear, the effects of the criminal justice system are not color blind.”

Read the entire statement from Ben and Jerry’s here:

http://www.benjerry.com/whats-new/why-black-lives-matter

FREE Be Healthy Expo, August 13th, Camden NJ , Sponsored by CAMCare and Radio One. Fun for the entire family!

Free Health Screenings, Special guests, vendors, celebrity basketball game, line dancing and fun for the entire family! 10AM -4PM. 1865 Harrison Avenue, Camden NJ 08105

Be Healthy 2016 w CamcareBe Healthy General Tentative Outline

Work Shops

  • Chubbie’s (Kids Workshops for ages 5 – 12)
  • Ray and Joan Kroc Salvation Army Community Center Presentation
  • Local Physicians

Vendors Available From 10 a.m. – 4 p.m.

Indoor Fitness Activities

  • Line Dancing with Yolanda Sample – with Lady B
  • “Big Girl Work Out” with Praise 103.9 host Dezzie (Family Fitness)
  • Fit Camp Lite by WIT (Whatever It Takes) Fitness Group (Adult Fitness)

Outdoor Fitness Activities – Brought to you by The Army

  • Family Challenges

Celebrity Basketball Game

  • Hosted by Radio-One Talent, Musicians, Comedians, and Former Sports Players! We Also Have A Halftime Slam Dunk Contest!

Born of Warriors- Original Poetry inspired by the #PhilandoCastile murder

“Born of Warriors” Original Poetry to encourage parents during this time of heightened racism. Rise up from a place of strength and have faith that the lives lost will not be in vain. #blacklivesmatter #bornofwarriors

Toni's Room

Born of Warriors

Now is not the time to sit down and grow weary

For we are born of warriors

Trained on soil rich with the spirits that passed before us

We were selected from our tribe and trained for battle

Even stripped of our land, our riches and our families

We stood strong ushering the chained weary in front of us

Walking miles to the beach to meet our battle with the sea

Some were not strong enough to endure the nausea swaying beneath our ribs

Diseased corpses laying by, vicious attacks of salt water on open wounds

Watching the constant raping of wombs and deep screams of torment

Many were not trained for this battle and vanished into the sea at night for comfort

They were not capable of taking the journey so they took their own lives instead

But we did not

We are born of warriors

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Donna Ford interview on Closing the Achievement Gap

Donna Ford will be speaking at the S.E.N.G. Conference this year. This is a very comprehensive discussion on the factors that come into play when gifted students are underachieving. Visit S.E.N.G. for more information. The conference we attended several years ago was life-changing and provided the information, resources and support we needed to successfully fight for our gifted student’s acceleration at school.

 

 

 

June 25TH National Fatherhood Conference, Rescheduled – Philadelphia, PA

 

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Update: The Fatherhood Conference had to be rescheduled due to issues with the venue, but it is on and upgraded this Saturday! There will be prizes such as laptops given away for fathers and young men. Please come out 9am-3pm!

This is the eleventh year that Joel Austin, the founder of Daddy University has traveled throughout the city of Philadelphia from radio station to television interview, blog interview and social networking gatherings to convey his passion for combating fatherlessness and supporting men who desire to be the best Fathers their children need. There is an epidemic of fatherlessness in our communities which can be traced back to slavery, and is exacerbated by today’s judicial system that unfairly targets and prosecutes African-American men at an alarming rate. According to the NAACP Criminal Fact Sheet, one in six African-American men are in prison compared to 1 in 100 African American women.

We need our men. We need our men to be great leaders, providers and fathers. When previously incarcerated fathers are released into society, who is there to help them reconnect with their offspring? When young men become fathers and have no male figure in their lives, who will guide them and support them? When our husbands, sons and grandchildren need resources to help them learn good parenting and or/co-parenting skills, where will they go to seek help? The National Fatherhood Conference  is the answer.

This FREE conference held in the Philadelphia School District Education Center, 440 North Broad Street, Philadelphia PA in addition to free breakfast and lunch, provides numerous workshops on everything from custody to co-parenting, financial literacy, and even how to do your daughter’s hair. There is also LIMITED free childcare for those who register early, and a Young Men’s Conference for those who bring their sons between the age of 11 and 18. The Young Men’s Conference runs the same time as the Fatherhood Conference and they will also be provided breakfast and lunch if they register. The time to reach our young men is now, before they fall victim to the school to prison pipeline. Even if you are not a father or for some reason are not attending the conference, you can still register a young man and bring him to attend. The Young Men’s workshops include but are not limited to entrepreneurship, resolving conflict and dealing with “haters” as well as hygiene and financial literacy.

You can find out more information on the flyers above and below this post and by visiting the 11th National Fatherhood Conference registration page. African American Parenting will be in attendance and will post a picture of you and your child on our Facebook post to show all of the wonderful fathers and father figures in attendance. Register today and let us  applaud you for your desire to be the best father your child deserves!

Register Here —-> National Fatherhood Conference

We’ll see you at the Conference!

Young Men Conference